Ben’s Friends co-founder Ben Munoz shared in CMX Hub how to build trust from patients with rare diseases. According to Munoz, making members feel welcomed is key. The welcome is…
Author: Rose Andrade
95% of Rare Diseases have No Drug or Therapy
Rare disease “affect more people than the biggest headline-grabbing diseases on the planet.” View this infographic produced by CrowdMed to see the stats: The Epidemic No One Is Talking About:…
Is the Price of Generic Drugs in the US Going Up?
A 1000% price hike in the cost of generic drugs? Can that be true? According to this recent article from the AARP Public Policy Institute (PPI), 27% of the generic…
How Can I Help?
Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you. Ben's Friends is a 501(c)(3) non-profit, and your donations is…
Member’s Talk
"I'm excited to be representing such a great organization like Ben's Friends. Ben's Friends has helped so many, and we'd love to know how we've helped you, too. We've seen…
Mark Krueger and Associates,Inc Blog Featured Ben’s Friends
Mark Krueger & Associates, Inc., one of the leading consultant to pharmaceutical, biotech, device and diagnostic companies features Ben’s Friends. John Stamler, Ben’s Friends Board Member, contributes on MK&A page…
Global Genes Project Features Ben’s Friends
The Global Genes Project, leading rare and genetic disease patient advocacy organization in the world, highlighted Ben's Friends bringing unique communities to rare disease patients. Read more from this article.
Risk, UK Blog Features Ben’s Friends
Dr. Richard A. Lawhern, Ph.D., community moderator, content author and Resident Research Analyst with “Living With TN”, an online community among Ben’s Friends, writes about the rapid growth of the…
Forbes.com Features Ben Munoz and Ben’s Friends
Ben Munoz and Ben's Friends Patient Communities were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.
Pharmaphorum Interviews LivingWithAtaxia Moderator Alan Tomas
To mark the rare disease themed month and rare disease day 2014, Pharmaphorum's interviewed LWA moderator Alan Tomas. Here he shares his experience and discusses how powerful the internet can…