Living with ataxia can bring many challenges—changes in balance, coordination, speech, mobility, and even everyday...
Creating communities for rare disease patients worldwide.
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Patient Communities for People with Rare Diseases
Today, over 300 million people have rare disease. That's 4% of the total world population.
Ben’s Friends ensures that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
Our Featured Communities
Living With Ataxia: Finding Strength Through Support
Living with ataxia...
5 Ways to Cope With Erythromelalgia
If you’re living...
LivingwithFibromyalgia.org: What is Fibromyalgia and How Does it Affect a Person’s Work?
Fibromyalgia is a...
LivingwithPSC.org: Helpful Information About Primary Sclerosing Cholangitis
Primary Sclerosing...
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