Safe and Supportive Communities for Rare Disease Patients
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What Patients Say
Hear patients describe how connecting with others has changed their lives.
Shalon W. (CA)
Exactly what I had been missing and so desperately wanted.
Jo (UK)
I consider the members here part of my family and I have made friendships I know will last a lifetime.
W.B. (CA)
Before joining the CIDP community, I didn’t think I had any options.
James (TX)
Avmsurvivors.org has allowed me to meet other AVM survivors online and in person.
Sharyn
Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.
Hiro
AVMSurvivors was the first and only active and well-maintained platform I found, where I finally realized that I was not alone in my fight.
Caryn D. (TX)
I became a member and met AVM survivors from all over the world.