Today, over 300 million people have rare disease. That's 4% of the total world population.

Ben’s Friends ensures that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

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Our Featured Communities

LivingwithNarcolepsy.org: Narcolepsy Is Beyond Sleepiness. How Does it Affect a Patient’s Life?

Narcolepsy, often...

LivingwithNarcolepsy.org: Narcolepsy Is Beyond Sleepiness. How Does it Affect a Patient’s Life?

Narcolepsy, often...

Narcolepsy, often thought to be a sleep disorder, is in fact a pervasive neurologic disorder with a genetic origin that...

LivingwithAddisons.org: 4 Things to know to help a friend living with Addison’s Disease

Addison’s Disease...

LivingwithAddisons.org: 4 Things to know to help a friend living with Addison’s Disease

Addison’s Disease...

Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of...

LivingwithFibromyalgia.org: What is Fibromyalgia and How Does it Affect a Person’s Work?

Fibromyalgia is a...

LivingwithFibromyalgia.org: What is Fibromyalgia and How Does it Affect a Person’s Work?

Fibromyalgia is a...

Fibromyalgia is a chronic illness that involves widespread pain or pain that can be felt all over the body. It also...

LifewithCrohnsColitis.org: Some Things to Understand about Crohn’s Disease

You just found out...

LifewithCrohnsColitis.org: Some Things to Understand about Crohn’s Disease

You just found out...

You just found out that your friend has Crohn’s disease, an autoimmune illness that causes inflammation in the...

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