Partnership will provide 75,000+ patients across more than 40 rare conditions with access to critical clinical trial information online New York, NY (June 1st, 2020) — Ben’s Friends, Antidote Technologies,…
Category: Press Releases
Ben’s Friends Co-hosts University of Toronto Rare Disease Conference
March 10,2019 - Ben's Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference at Hart House, Toronto. The Conference featured…
BioBlast Matches Up To $5,000 In Donations To Help Build A New Home For Ben’s Friends
BioBlast Pharma will match each dollar up to $5,000 donated to Ben’s Friends for the migration of the Oculopharyngeal Muscular Dystrophy (OPMD) and Spinocerebellar Ataxia Type 3 (SCA3) patient communities…
CMX Hub Features Ben’s Friends
Ben’s Friends co-founder Ben Munoz shared in CMX Hub how to build trust from patients with rare diseases. According to Munoz, making members feel welcomed is key. The welcome is…