After facing a life-threatening health crisis, Ben Muñoz ’07 MBA built an online community that now connects tens of thousands of rare disease patients each month. Read More
Category: Press Releases
Coping through virtual connection: rare disease support communities
Well before virtual interactions became the norm, Ben Munoz, a former Baylor medical student turned entrepreneur, founded Ben’s Friends after surviving a rare brain condition in 2006. Now a nonprofit…
Ben’s Friends, Antidote Technologies, and MyRareData Collaborate to Offer Virtual Rare Disease Clinical Trial Recruitment
Partnership will provide 75,000+ patients across more than 40 rare conditions with access to critical clinical trial information online New York, NY (June 1st, 2020) — Ben’s Friends, Antidote Technologies,…
Ben’s Friends Co-hosts University of Toronto Rare Disease Conference
March 10,2019 - Ben's Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference at Hart House, Toronto. The Conference featured…
BioBlast Matches Up To $5,000 In Donations To Help Build A New Home For Ben’s Friends
BioBlast Pharma will match each dollar up to $5,000 donated to Ben’s Friends for the migration of the Oculopharyngeal Muscular Dystrophy (OPMD) and Spinocerebellar Ataxia Type 3 (SCA3) patient communities…
CMX Hub Features Ben’s Friends
Ben’s Friends co-founder Ben Munoz shared in CMX Hub how to build trust from patients with rare diseases. According to Munoz, making members feel welcomed is key. The welcome is…
Kellogg’s Alumni Magazine Features Ben’s Friends
Ben Munoz and Scott Orn, both Kellogg Alums Class of 2007, are incredibly honored and grateful that Kellogg's Alumni Magazine featured Ben's Friends in the Summer 2013 edition. The Kellogg…