BensFriends.org

BensFriends.org

Patient Communities for People with Rare Diseases

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BensFriends.org

BensFriends.org

Patient Communities for People with Rare Diseases

  • Our Story
    • Mission
    • History
    • About Us
    • Team
    • Partners
    • Contact Us
    • Press Kit
  • Our Communities
    • Community List
    • Why Join?
    • Contribute
    • What Patients Say
  • Get Involved
    • Donate
    • Dedicate A Gift
    • Internship
    • Volunteer
    • Shop CafePress
    • Contact Us
  • Resources
    • Patient Resources
    • Newsletters
    • Get-Connected
  • Donate
    • Donate
    • Dedicate A Gift
    • Donation FAQ’s
    • Thank You, Donors
  • News
    • Blog
    • Press Releases
  • Donate Now

Category: Uncategorized

Foot and Float to Build 10 New Communities

August 9, 2019Rose Andrade

Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop - us not on Land or…

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2018 Ben’s Friends Community Network Update

February 6, 2019Rose Andrade

The following new communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben's Friends Patient communities and may be of interest…

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Payment Form for BAF + BF Partnership (Hidden)

February 25, 2017bfredesign

Hi, Christine Buckley and Team, We set up this Paypal recurring payments form to make this easier for everyone. Just click the SUBSCRIBE button below and you'll be redirected to…

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Ben’s Friends Newsletter November 2016

November 5, 2016Rose Andrade

     MESSAGE FROM BEN Hi, everyone, I hope this message finds you and your loved ones well.   Ben’s Friends Patient Communities was founded in 2007; I had just…

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Why Ben’s Friends Moved Its Patient Support Communities to Discourse from Ning

September 25, 2016Scott Orn

Ben’s Friends History When we started Ben’s Friends Patient Support Communities in 2007, our mission was to provide support for the millions of patients with rare diseases across the world.…

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95% of Rare Diseases have No Drug or Therapy

September 17, 2015Rose Andrade

Rare disease “affect more people than the biggest headline-grabbing diseases on the planet.” View this infographic produced by CrowdMed to see the stats: The Epidemic No One Is Talking About:…

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Is the Price of Generic Drugs in the US Going Up?

September 17, 2015Rose Andrade

A 1000% price hike in the cost of generic drugs? Can that be true? According to this recent article from the AARP Public Policy Institute (PPI), 27% of the generic…

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How Can I Help?

September 15, 2015Rose Andrade

Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you. Ben's Friends is a 501(c)(3) non-profit, and your donations is…

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Member’s Talk

September 15, 2015Rose Andrade

"I'm excited to be representing such a great organization like Ben's Friends. Ben's Friends has helped so many, and we'd love to know how we've helped you, too. We've seen…

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