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Patient Communities for People with Rare Diseases

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Category: Feature Community

5 Ways to Cope With Erythromelalgia

October 8, 2026Rose Andrade

If you’re living with erythromelalgia, you know that the pain can be difficult to explain to someone who has never experienced it. The burning sensation, warmth, redness, and unpredictable flare-ups…

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Living With Ataxia: Finding Strength Through Support

October 8, 2026Rose Andrade

Living with ataxia can bring many challenges—changes in balance, coordination, speech, mobility, and even everyday routines that others may take for granted. Some days may feel overwhelming, while other days…

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LivingwithPSC.org: Helpful Information About Primary Sclerosing Cholangitis

June 8, 2025Rose Andrade

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile ducts, causing them to narrow and, eventually, become completely obstructed.…

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LifewithCrohnsColitis.org: Some Things to Understand about Crohn’s Disease

June 28, 2023Rose Andrade

You just found out that your friend has Crohn’s disease, an autoimmune illness that causes inflammation in the digestive tract.  They now know the reason behind the abdominal pain, mouth…

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LivingwithFibromyalgia.org: What is Fibromyalgia and How Does it Affect a Person’s Work?

June 28, 2023Rose Andrade

Fibromyalgia is a chronic illness that involves widespread pain or pain that can be felt all over the body. It also causes fatigue, headaches, sleep and digestive problems, brain fog,…

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LivingwithAddisons.org: 4 Things to know to help a friend living with Addison’s Disease

June 28, 2023Rose Andrade

Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the stress hormone cortisol.  This then results in problems regulating salt…

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Acute Disseminated Encephalomyelitis (ADEM)
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