To Connect with Other Patients
If you have a rare disease, you know how lonely it can be to cope with symptoms and to seek out treatment. When you join a patient community, you realize that you’re not alone in this.
To Learn From Those Who Know
While a patient is not a substitute for professional medical care, only a patient who has been in your shoes can understand what it’s really like. Join a patient community and learn from others who’ve been there.
To Help Other People Like You
When you were first diagnosed, you remember how scary it was. Over the years, you’ve learned how to cope with the emotions. Many members join a patient community just days after being diagnosed, so your comforting words are priceless.