We Build Patient Communities for
People with Rare Diseases
Changing patients' lives every day.
What is Ben's Friends?
BensFriends.org is a network of safe and supportive patient communities for anyone affected by a rare disease.
Watch the video below to learn more about us.
2011 Year in Review
2011 was a breakthrough year for Ben's Friends Patient Communities. We doubled in size, traffic, and members. More importantly, we set up a great organizational structure for fulfilling the same mission that has been in place since day one: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them. Our plans for 2012 are to grow even bigger, help even more people, while continuing to live by the same values that we were founded on.
As Seen In
About Our Members
14,000+ lives changed...and counting.
What Members Are Saying
Members, Share a Testimonial
Are you a member who would like to share a testimonial? Email your story to testimonials@bensfriends.org.
Real Lives Changed
Communities
27 communities launched... and counting.
· Acute Disseminated Encephalomyelitis (ADEM)
· ADHD
· Adrenoleukodystrophy (ALD)
· Arteriovenous Malformation (AVM)
· Ataxia (International)
· Ataxia (U.S.A.)
· Atrial Septal Defect
· Autism
· Brain Aneurysms
· Charcot Marie Tooth (CMT)
· Chiari Malformation
· Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
· Crohn's Disease
· Disabilities
· Eagle Syndrome
· Erythromelalgia
· Fibromyalgia
· Glossopharyngeal Neuralgia (GPN)
· Hepatitis C
· Lupus
· Multiple Myeloma
· Myositis
· Primary Sclerosing Cholangitis (PSC)
· Psoriatic Arthritis (PsA)
· Synovial Sarcoma
· Trigeminal Neuralgia (TN)
· Von Willebrand's Disease (VWD)
Are you in crisis? Please call 1-800-273-TALK
Sponsor a Community
Ben’s Friends is made up of an army of volunteers and relies on donations to fund operations.
Make a One-Time Donation
Your one-time donation goes directly towards supporting our patient communities.
4 Quick Ways You Can Help
1. Tell a friend or relative that we may have a community for them. Our communities are listed on the left side of this page.
2. Tell journalists and bloggers about our story and our mission.
3. Help us launch a new patient community for someone you know. Email info@bensfriends.org.
4. Help our Google rankings by linking to BensFriends.org or any community from any web site you can.
