What is Ben's Friends?

Watch the video below to learn more about us and one of our patient communities, LivingWithTN.org.

For Patients

If you have a rare disease, you know how lonely it can be to cope with symptoms and to seek out treatment. When you join a patient community, you realize that you're not alone in this.

For Partners

If you represent a non-profit organization committed to fighting a rare disease, a socially responsible corporation looking to do well and do good, or a hospital or physician that treats patients with rare diseases, we are interested in working with you.

For Press

Please direct all media inquiries to info@bensfriends.org.

Read more about our patient communities here.