Watch the video below to learn more about us and one of our patient communities, LivingWithTN.org.
If you have a rare disease, you know how lonely it can be to cope with symptoms and to seek out treatment. When you join a patient community, you realize that you're not alone in this.
If you represent a non-profit organization committed to fighting a rare disease, a socially responsible corporation looking to do well and do good, or a hospital or physician that treats patients with rare diseases, we are interested in working with you.
Please direct all media inquiries to info@bensfriends.org.
Aicardi Syndrome
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Chiari Malformation
Crohn's Disease
Fibromyalgia
Metastatic Breast Cancer
Myositis
Tourette's Syndrom'
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
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8794 lives changed...and counting.
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