Welcome to Ben's Friends Patient Communities

We are a mission-driven company dedicated to creating patient communities for people with rare diseases.

Our Story in 84 Seconds

Watch the video below to learn why we are creating patient communities for people with rare diseases.



Why Join A Patient Community?

Connect with Other Patients

If you have a rare disease, you know how lonely it can be to cope with symptoms and to seek out treatment. When you join a patient community, you realize that you're not alone in this.

Learn From Those Who Know

While a patient is not a substitute for professional medical care, only a patient who has been in your shoes can understand what it's really like. Join a patient community and learn from others who've been there.

Help Other People Like You

When you were first diagnosed, you remember how scary it was. Over the years, you've learned how to cope with the emotions. Many members join a patient community just days after being diagnosed, so your comforting words are priceless.

What Members Are Saying

"Just writing my story was so therapeutic. I had felt so alone and it felt so good to hear from other AVMers. It also makes me feel better when I can help others." -Connie T (NY)

"Living with a facial AVM for my entire life I had never been able to find a sense of community and understanding until AVMSurvivors.org. The opportunity to network, share information, ask questions, and provide answers was exactly what I had been missing and so desperately wanted. I've seen first hand the true benefit of a support site like this. AVMSN has become a part of my everyday." -Shalon W (CA)

"I was diagnosed with TN in October 2008 and have been a member of LivingWithTN.org since November 2008. I consider myself fortunate that the site was set up shortly after my diagnosis. I had searched on-line beforehand and most of the pages I read mentioned "suicide disease" which was pretty depressing to say the least. From the moment I joined here I didn't feel so alone and isolated. It was very comforting. I consider the members here part of my family and I have made friendships I know will last a lifetime." -Jo (UK)