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"Just writing my story was so therapeutic. I had felt so alone and it felt so good to hear from other AVMers. It also makes me feel better when I can help others." -Connie T (NY) |
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"Living with a facial AVM for my entire life I had never been able to find a sense of community and understanding until AVMSurvivors.org. The opportunity to network, share information, ask questions, and provide answers was exactly what I had been missing and so desperately wanted. I've seen first hand the true benefit of a support site like this. AVMSN has become a part of my everyday." -Shalon W (CA) |
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"I was diagnosed with TN in October 2008 and have been a member of LivingWithTN.org since November 2008. I consider myself fortunate that the site was set up shortly after my diagnosis. I had searched on-line beforehand and most of the pages I read mentioned "suicide disease" which was pretty depressing to say the least. From the moment I joined here I didn't feel so alone and isolated. It was very comforting. I consider the members here part of my family and I have made friendships I know will last a lifetime." -Jo (UK) |
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