Press > Press Releases

New Amyloidosis Patient Community
February 27 2012: Veteran moderator Louisa C. (from AVM) helped us launch this new community for people affected by amyloidosis.

New Narcolepsy Patient Community
February 27 2012: Genes that might be a cause of the most common forms of narcolepsy have been identified and cures are being developed. Until then, patients can connect with each other here.

New Fabry Disease Patient Community
February 27 2012: Today, we officially launch a new community for people living with the genetic disease Fabry.

Ben's Friends Membership Campaign
September 19 2011: Thanks for Ben’s Friends friend and supporter Sugar Paper and Extole for their help in launching our membership campaign/sweepstakes.

New Patient Community for Disabilities
September 15 2011: Star moderator JC Colyer leads the way with our newest community, a support group for people living with a physical disability.

New Patient Community for Hepatitis C
September 1 2011: We are pleased to announce the launch of a new support community for patients living with hepatitis C.

New Patient Community for ADHD
August 15 2011: BensFriends.org launched a new patient community for adults and children living with ADHD. This community is being co-launched with WatchMinder.com, a small company offering products for ADHD patients.

ALDSupport.org Nominated as Official ALD Patient Community
August 6 2011: An alliance of ALD foundations has nominated us as one of their official ALD patient communities. Kudos to moderators and members for creating a special place on the internet for ALD patients.

New Patient Community for Erythromelalgia
July 18 2011: Erythromelalgia is a neurovascular pain disorder that is associated with the feeling of walking on hot coals. Primary erythromelalgia is a chronic condition with no cure available yet.

Partnership with Disability Digest
April 26 2011: We are pleased to announce a new partnership with The Disability Digest, a leading resource for disabled patients seeking assistance with social security claims, jobs/income opportunities, and housing discrimination issues. Completely free.

Multiple Myeloma Web Address Changed.
April 26 2011: Our multiple myeloma community as a new web site address. Community members, please update your bookmarks.

Partnership with Patient Power
March 21 2011: We are pleased to announce a new partnership with Patient Power, a patient advocacy group led by Andrew Schorr. Patient Power will be providing us with original content, including videos useful for specific conditions we cover.

New Patient Community for Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
March 18 2011: A friend of our’s recently requested that we launch a community for the disease a relative of his was born with. A few days later, LivingWithCIDP.org was born to help those newly diagnosed with CIDP understand the condition and band together to search for a cure.

Brain Aneurysm Community Changes Address
February 23 2011: Our brain aneurysm support community (in partnership with the Brain Aneurysm Foundation) has changed its web address. The old address was bafoundsupport.org. The new address is bafsupport.org. Please update your bookmarks.

Psoriatic Arthritis Community Launched
November 23 2010: Ben’s Friends launches a new community for people living with a rare Psoriatic Arthritis.

Myeloma Community Launched
October 14 2010: Ben’s Friends launches a new community for people living with a rare form bone marrow cancer called Myeloma.

Glossopharyngeal Neuralga Community Launched
October 4 2010: Ben’s Friends launches a new community for people living with a rare anatomical condition called Eagle Syndrome.

Eagle Syndrome Community Launched
September 30 2010: Ben’s Friends launches a new community for people living with a rare neurological disorder Glossopharyngeal Neuralgia (facial nerve condition)

Charcot Marie Tooth Community Launched
September 14 2010: Ben’s Friends launches a new community for people living with a rare neurological disorder Charcot Marie Tooth (related to muscular dystrophy)

Ben's Friends Launches New Fibromyalgia Community
September 9 2010: Ben’s Friends launches a new community for patients living with fibromyalgia.

Primary Sclerosing Cholangitis Community Launched
August 17 2010: Ben’s Friends launches a new community for people living with a rare liver disorder called primary sclerosing cholangitis.

AVM Survivors Meet In LA
July 24 2010: Ben’s Friends helps organize an in-person meetup of AVM survivors in Los Angeles.

Moderators Web Site Launched
July 19 2010: Ben’s Friends helps organize an in-person meetup of AVM survivors in Los Angeles.

Von Willebrand Community Launched
June 28 2010: Ben’s Friends launches a new community for people living with a rare blood disorder called Von Willebrand’s disease.

Atrial Septal Defect Community Launched
June 27 2010: Ben’s Friends launches a new community for survivors of atrial septal defect, a congenital heart defect.

Metastatic Breast Cancer Community Launched
June 4 2010: Ben’s Friends launches a new community for people coping with late stage breast cancer.

Tourette's Syndrome Community Launched
May 24 2010: Ben’s Friends launches a new community for people affected by Tourette’s syndrome.

Myositis Community Launched
March 17 2010: Ben’s Friends launches a new community for people affected by all forms of myositis.

Aicardi Syndorome Community Launched
February 19 2010: Ben’s Friends launches a new community for families affected by Aicardi Syndrome.

Chiari Malformation Community Launched
February 19 2010: Ben’s Friends launches a new community for people dealing with symptoms or treatment of a chiari malformation.

Ben's Friends Launches New Adrenoleukodystrophy Community
February 11 2010: Ben’s Friends launches a new community for families affected by adrenoleukodystrophy (ALD).

Ben's Friends Partners with Brain Aneurysm Foundation on New Patient Community
January 12 2010: Ben’s Friends launches and manages a patient community for brain aneurysm survivors, in collaboration with the non-profit Brain Aneurysm Foundation.

5th Annual AVM/Aneurysm Walk
January 10 2010: TAAF has set the date for their 5th annual walk to raise funds and awareness of AVM and aneurysms.

Ben's Friends AVM Community Membership Reaches 1400
January 4 2010: Membership has tripled since this time last year. There are many more patients to help, so please continue to spread the word.

Ben's Friends Ataxia Community Featured on About.com
August 15 2009: LivingWithAtaxia.org was recently recommended by About.com for ataxia patients.