Patients > Why Join a Patient Community?
To Connect with Other Patients
If you have a rare disease, you know how lonely it can be to cope with symptoms and to seek out treatment. When you join a patient community, you realize that you're not alone in this.
To Learn From Those Who Know
While a patient is not a substitute for professional medical care, only a patient who has been in your shoes can understand what it's really like. Join a patient community and learn from others who've been there.
To Help Other People Like You
When you were first diagnosed, you remember how scary it was. Over the years, you've learned how to cope with the emotions. Many members join a patient community just days after being diagnosed, so your comforting words are priceless.
Communities
16 communities launched... and counting.
Don't see your condition?
Email info@bensfriends.org and we'll launch a new community for your condition.
Aicardi Syndrome
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Chiari Malformation
Crohn's Disease
Fibromyalgia
Metastatic Breast Cancer
Myositis
Tourette's Syndrome
Primary Sclerosing Cholangitis (PSC)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Join Our Mailing List
4 Quick Ways You Can Help
1. Tell a friend or relative that we may have a community for them. Our communities are listed on the left side of this page.
2. Tell journalists and bloggers about our story and our mission.
3. Help us launch a new patient community for someone you know. Email info@bensfriends.org.
4. Help our Google rankings by linking to BensFriends.org or any community from any web site you can.
Partners
Non-profit organization? Socially responsible corporation? Hospital or physician? We are interested in working with you.
