Ben's Friend Patient Communities Featured In Social Media and Health Care Report
February 17 2012:
Stanford Medical student and researcher Joyce Ho recently interviewed BensFriends.org founder Ben Munoz about the use of Ning for online communities.
Ben's Friends Patient Communities Partners with RareDiseaseDay.org
February 10 2012:
We're pleased to announce that we are now part of a large consortium of non-profits, foundations, and social enterprises working with RareDiseaseDay.org to fight for the needs of rare disease patients around the world.
Crohn's Community Founder Jason L. Named Health Activist Hero
February 1 2012:
Crohn's community founder and moderator Jason L. has been named as a Health Activist Hero finalist by WEGO Health in the community category. Kudos to Jason!
Ben's Friends Partners with Advocacy for Patients With Chronic Illness
January 24 2012:
Ben's Friends is now partnering with Advocacy for Patients with Chronic Illness. This amazing organization provides free legal help for patients with chronic illness.
Ben's Friends Partners with Friends of Treasure
January 24 2012:
Friends of Treasure is an organization that helps patients with rare diseases and vascular malformation. They also offer financial assistance for patients. Read more on their web site, FriendsOfTreasure.com.
Ben's Friends Featured on Indiegogo.com
January 10 2012:
Ben's Friends made the home page of Indiegogo.com for our 2012 fundraising campaign.
Ben's Friends Featured in London Daily Telegraph
January 2 2012:
Ben's Friends made the London Daily Telegraph. Very cool. This is starting to happen a lot more often and it's a good sign for 2012!
Help Us Launch More Communities in 2012
January 2 2012:
Help us launch even more patient communities in 2012. Every dollar you contribute goes directly towards maintenance costs and launching new communities.
Moderator JC Colyer Featured in 'Songs and Sayings'
November 21 2011:
Community moderator and core team member JC Colyer was featured today on the web site "Songs and Sayings" for his works helping rare disease patients through Ben's Friends. Great job!
Moderator JC Colyer Featured in 'Pay It Forward'
November 11 2011:
Community moderator and core team member JC Colyer was featured today on the web site "Pay It Forward" for his commitment to helping others in need of support. Kudos, JC!
Ataxia Community Moderator Alan Thomas Featured in Welsh Focus
November 7 2011:
LivingWithAtaxia.org moderator and patient activist was featured in the online magazine Welsh Focus for his work raising awareness about disability issues.
Extole Launches Membership Campaign
September 19 2011:
BensFriends.org supporter Extole donates time and energy to Ben's Friends Membership Campaign.
Cofounder Scott Orn Interviewed in TheDailyLove.com
August 15 2011:
BensFriends.org cofounder Scott Orn was interviewed by TheDailyLove.com about the seeds of entrepreneurship.
SynovialSarcomaSurvivors.org Member Rides to Cure Cancer
June 13 2011:
BensFriends.org member Eugene B. has been diagnosed with terminal cancer, but that doesn't stop him from riding to find a cure. Kudos to those like Eugene who will never stop fighting!
BensFriends.org Featured in Seth Godin Book
April 24 2011:
BensFriends.org was featured as one of the 100 top ranked stories of Tales of the Revolution, a book about people seeing a problem and deciding to do something about it.
Rare Disease Patient Communities on NPR
March 4 2011:
NPR's Talk of the Nation discusses the importance of rare disease patient communities for patient emotional and physical health. "One in five Internet users go online seeking others with similar health concerns."
Partner and BensFriends.org Moderator John Stamler on the Marathon Show
February 25 2011:
Partner, moderator, and ASD survivor John Stamler talks about running the New York City Marathon 6 months after heart surgery to repair an "atrial septal defect."
Gregory Yeadon Sees Opportunity for Servant Leadership
February 25 2011:
Friend and supporter Greg Yeadon featured in University of Richmond alumni magazine for his work helping BensFriends.org.
Get On With It - Partner John Stamler Featured in Brown Alumni Magazine
January 7 2011:
Partner, moderator, and ASD survivor John Stamler was featured in Brown Alumni Magazine for overcoming obstacles, including heart surgery two months prior, to run the 2010 New York City marathon.
March Communications Q&A with BensFriends.org Co-founder Ben Munoz
December 28 2010:
BensFriends.org co-founder Ben Munoz was interviewed by PR consulting firm March Communications about how BensFriends.org got started and how it aims to change the lives of patients living with a rare disease.
BensFriends.org Member Featured in Oregon Newspaper
December 20 2010:
AVMSurvivors.org member Patti Gilstrap was the subject of an in a local newspaper for her part in generating awareness for cavernous malformations. Great job, Patti!.
BensFriends.org Featured in ShoestringVenture.org
December 17 2010:
The story behind BensFriends.org was featured in ShoestringVenture.org: The Startup Bible Blog.
Co-founders of BensFriends.org Featured in Kellogg Newsletter
December 15 2010:
Scott Orn '07 and Ben Munoz '07, co-founders of BensFriends.org were mentioned in the Kellogg School of Management Entrepreneurial Practice Newsletter.
A Marathon with a Heart, Literally
December 6 2010:
BensFriends.org partner John Stamler was featured today in DailyGood.org as he runs the NYC marathon for BensFriends.org.
BensFriends.org Crohn's Community Featured on SavantMD.com
November 19 2010:
BensFriends.org support community for patients living with Crohn's disease was the subject of a welcome video from Dr. Mark Savant at SavantMD.com.
Brown Grad Gains Inspiration Through Social Media
November 6 2010:
Ben's Friends partner John Stamler was written about in Providence's GoLocalProv.com for his work with BensFriends.org.
BensFriends.org Featured in PolitikTimes.com
November 1 2010:
BensFriends.org rare disease patient communities was featured in today's edition of PolitikTimes.com.
John Stamler '94 To Run New York City Marathon
November 1 2010:
Ben's Friends partner John Stamler was featured in MxSchool.edu as he runs the NYC marathon for BensFriends.org.
Ben's Friends Founder Interviewed on Idea Mensch
September 13 2010:
Ben Munoz, the founder of Ben's Friends, was interviewed by Idea Mensch, which features people with good ideas and whose mission is to help passionate people bring their ideas to life.
Ben's Friends Trigeminal Neuralgia Community Listed on Organized Wisdom
July 21 2009:
LivingWithTN.org was selected as a preferred support group for TN patients by Organized Wisdom.
27 communities launched... and counting.
· Acute Disseminated Encephalomyelitis (ADEM)
· ADHD/ADD
· Adrenoleukodystrophy (ALD)
· Arteriovenous Malformation (AVM)
· Ataxia (International)
· Ataxia (U.S.A.)
· Atrial Septal Defect
· Autism
· Brain Aneurysms
· Charcot Marie Tooth (CMT)
· Chiari Malformation
· Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
· Crohn's Disease
· Disabilities
· Eagle Syndrome
· Erythromelalgia
· Fibromyalgia
· Glossopharyngeal Neuralgia (GPN)
· Hepatitis C
· Lupus
· Multiple Myeloma
· Myositis
· Primary Sclerosing Cholangitis (PSC)
· Psoriatic Arthritis (PsA)
· Synovial Sarcoma
· Trigeminal Neuralgia (TN)
· Von Willebrand's Disease (VWD)
Are you in crisis? Please call 1-800-273-TALK

Ben’s Friends is made up of an army of volunteers and relies on donations to fund operations.
Your one-time donation goes directly towards supporting our patient communities.
1. Tell a friend or relative that we may have a community for them. Our communities are listed on the left side of this page.
2. Tell journalists and bloggers about our story and our mission.
3. Help us launch a new patient community for someone you know. Email info@bensfriends.org.
4. Help our Google rankings by linking to BensFriends.org or any community from any web site you can.