How to Help

Are you interested in helping patients and families of patients affected by a rare disease?

Our Story

How You Can Help

Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you.

1. Help a Friend or Relative: if you know someone with a rare disease, forward them our web site or ask them to contact us.<

2. Connect Us: if you have a connection you think would be interested in helping us or partner with us (PR consultants, reporters, medical professionals, hospitals) please let us know.

3. Help Spread the Word: help us spread the word about bensfriends.org or a specific patient community. Follow us on Twitter at (@bensfriends). If you have marketing or PR expertise, we would love to hear your ideas on ways to spread the word and help more people.

4. Start a Patient Community: if you have a rare disease and aren't happy with the support available to you, help us fix that with a new patient community.

5. Help Us with PR: our biggest need is to get this story in front of reporters and bloggers. If you have a blog, blog about us. If you know a blogger, send them a link to our web site.

6. Help Us Increase Our Google Rank: most people find us via Google. If you operate a web site, linking to BensFriends.org helps make our patient communities easier to find for the patients who need us.