Are you interested in helping patients and families of patients affected by a rare disease?
Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you.
1. Help a Friend or Relative: if you know someone with a rare disease, forward them our web site or ask them to contact us at info@bensfriends.org
2. Connect Us: if you have a connection you think would be interested in helping us or partner with us (PR consultants, reporters, medical professionals, hospitals) please let us know at info@bensfriends.org.
3. Help Spread the Word: help us spread the word about BensFriends.org or a specific patient community. Follow us on Twitter at (@bensfriends). If you have marketing or PR expertise, we would love to hear your ideas about ways to spread the word and help more people. Contact us at info@bensfriends.org.
4. Start a Patient Community: if you have a rare disease and aren't happy with the support available to you, help us fix that with a new patient community. Contact us at info@bensfriends.org.
5. Help Us with PR: our biggest need is to get this story in front of reporters and bloggers. If you have a blog, blog about us. If you know a blogger, send them a link to our web site.
6. Help Us Increase Our Google Rank: most people find us via Google. If you operate a web site, linking to BensFriends.org helps make our patient communities easier to find for the patients who need us.
27 communities launched... and counting.
· Acute Disseminated Encephalomyelitis (ADEM)
· ADHD/ADD
· Adrenoleukodystrophy (ALD)
· Arteriovenous Malformation (AVM)
· Ataxia (International)
· Ataxia (U.S.A.)
· Atrial Septal Defect
· Autism
· Brain Aneurysms
· Charcot Marie Tooth (CMT)
· Chiari Malformation
· Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
· Crohn's Disease
· Disabilities
· Eagle Syndrome
· Erythromelalgia
· Fibromyalgia
· Glossopharyngeal Neuralgia (GPN)
· Hepatitis C
· Lupus
· Multiple Myeloma
· Myositis
· Primary Sclerosing Cholangitis (PSC)
· Psoriatic Arthritis (PsA)
· Synovial Sarcoma
· Trigeminal Neuralgia (TN)
· Von Willebrand's Disease (VWD)
Are you in crisis? Please call 1-800-273-TALK

Ben’s Friends is made up of an army of volunteers and relies on donations to fund operations.
Your one-time donation goes directly towards supporting our patient communities.
1. Tell a friend or relative that we may have a community for them. Our communities are listed on the left side of this page.
2. Tell journalists and bloggers about our story and our mission.
3. Help us launch a new patient community for someone you know. Email info@bensfriends.org.
4. Help our Google rankings by linking to BensFriends.org or any community from any web site you can.