Rare Genomics Institute is a non-profit organization that gives families afflicted by rare genetic disorders access to genome sequencing and expert analysis. Rare Genomics bring together scientists who share our passion for helping rare disease patients and leverage the crowdfunding capabilities of the Internet to bring the hope of a cure to our patients.
How RareGenomics.org Helps BensFriends
1. They offer free genetic counseling to help diagnose and learn more about rare diseases.
2. They help spread the word about genetic counseling and diagnosis program.