Brain Aneurysm Foundation’s mission is to provide support networks and educational resources to raise public awareness on early detection of brain aneurysms.
PatientPower.info is a service of Patient Power, LLC, based in Seattle with team members around the world. Patient Power® is devoted to helping the cancer patient or survivor and his family through knowledge, to get the best medicine and return to or maintain good health.
Rare Disease Day raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Rare Disease UK is the national campaign for people with rare diseases and all who support them.
CoRDS Registry at Sanford (CoRDS) is a centralized international patient registry that collects data to help advance research into rare diseases.