What Patients Say
Hear patients describe how connecting with others has changed their lives.
Shalon W. (CA)
Exactly what I had been missing and so desperately wanted.
James (TX)
​Avmsurvivors.org has allowed me to meet other AVM survivors online and in person.
Sharyn
​Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.
Hiro
AVMSurvivors was the first and only active and well-maintained platform I found, where I finally realized that I was not alone in my fight.
Caryn D. (TX)
I became a member and met AVM survivors from all over the world.
Jo (UK)
I consider the members here part of my family and I have made friendships I know will last a lifetime.
W.B. (CA)
Before joining the CIDP community, I didn’t think I had any options.